My daughter amazes me. She is so strong. She could easily just say that she is too tired, too worried about having a seizure in front of people, too scared, but she doesn't! She never gives up and I am so amazed by her strength. In February she was able to perform in an opera. She sings with the Utah Children's Choir and they were asked to sing in Utah Lyric Opera's production of La Boheme. Jeff and I were worried. It was very possible that she could have a seizure on stage, but the amazing directors of the opera were incredible! They not only allowed Alyssa to be in it but they also put Astro on stage with her! They could have easily said no. They are a semi professional company, and yet they were willing to take a risk in order for Alyssa to have this experience. I am still amazed at their kindness.
The children's chorus was in the second act which takes place in a town square during a celebration. They made Alyssa a street urchin who was pretending to be blind to be able to beg more successfully. Thus, Astro was her seeing eye dog. She begged at the main character who send her away empty handed and she got to kick him in the shins. She did such a great job! The children's chorus was so good! The entire opera was in Italian and they all knew every word and its correct pronunciation. I loved watching the entire process and have now become an opera fan!
It was an incredible experience and Alyssa had a marvelous time, but what amazed me most about her was her maturity level in regards to what her body needed to be successful. She did not want to have a seizure on stage and knew that it could easily happen so she took it upon herself to not let it happen if possible. Each night of the performance as the first act began she would find a quiet corner and would lay down on Astro and try to doze off for a few minutes. As soon as she would slip into sleep, sure enough, a seizure would strike. She purposefully caused her body to have a seizure, knowing that it would give her enough time to perform and get back off the stage before another one would be likely to hit. She came up with this plan all by herself and it worked! She made it though each performance without having a seizure on stage! The fact that an 11 year old could choose to miss time with friends and find a quiet place in order to force herself to have a seizure is remarkable to me. She is so smart, so conscientious, so determined and so fearless! I loved watching her enjoying herself and having an incredible experience despite the challenges that she has. She is my hero!
My Opera Stars! I am sure that Astro's trainers never thought that he would be in an opera!
Alyssa and one of her best friends. They were both street urchins.
It's a blurry picture but this is her onstage with her little round, dark glasses that she wore.
The children's chorus. Such wonderful kids! They all love Alyssa and Astro and have decided that Astro is the best pillow pet in the world. He is not only soft, but is also warm, gives kisses and is always with Alyssa! :)











