Tuesday, November 22, 2011

Updates

I haven't finished up our Disney World posts yet, but I promise that I will get back to it. Things have been crazy around here!

We have decided to take Alyssa back to Cleveland. She and I will be leaving in a week and will be gone for almost 3 weeks. She will be having some brain mapping done, have surgery to place grids on her brain to give the doctor's a clearer picture of where her seizures are coming from, and then if we do get that information and it will be beneficial to remove it, she will have surgery to resect the seizure focal point. How crazy is that? Jeff and I have really struggled making this decision, but we feel like this is the best chance that she has to truly be seizure free. Alyssa is also ready to go. She is scared to death, but is so tired of these seizures, that she is ready to try.

She and I won't be home until a few days before Christmas so I have been frantically trying to get all of our Christmas preparations ready and get she and I ready for this trip. It is coming up fast. Jeff will be joining us for a week of our stay, so I am also trying to get everything arranged for Tyler and Jared. Luckily we have amazing family and friends who are willing to help us out. We couldn't do it without them!

Jared likes to keep us on our toes as well. Last week he fell off the chair in the family room and broke his elbow. It is a mild break, luckily, but he is sporting an awesome green cast on his left arm from arm pit to wrist. He has adjusted well and hopefully won't need it for too long. The poor boy was absolutely miserable the night he did it. He cried all night and I was counting down the minutes until I could take him to the insta-care that morning! :) He is amazingly resilient though. Once he got his cast on, he has hardly complained at all about it.

I know that I have said it before, but my children are my heros! They are so tuff and I am grateful for all that they are teaching me!

Saturday, November 12, 2011

Support for Special Needs

’m posting this to enter a contest offered by Replace My Contacts at Support for Special Needs! I want to win the iPad2!

Wednesday, November 9, 2011

Disney World Day1


Our trip was FANTASTIC! The kids had so much fun and the whole week was just magical! It was truly an unforgettable experience. One that will never be repeated and I feel so grateful for the many people that made it happen. So I guess that I will start at the beginning!

We had to leave our house bright and early the day of our departure as our flight left at 8:30 AM. It was still dark when we left and Jared was very confused because he thought that we shouldn't be leaving because the sun wasn't up yet. :) As we got to the airport the sun was starting to peak over the mountains and he was greatly relieved to know that it was now morning and time for his wish trip! It was a long day of flying but the kids all traveled well and we arrived in Orlando right on time. And there waiting for us was our greeter from Give Kids the World who helped us with our luggage, got us in our rental car, and with directions in hand, sent us on our way to the village.

On the Plane

Give Kids the World is AMAZING! I had seen pictures of it, but you can't really appreciate it until you actually see it in person! As we checked in they gave Jared a stuffed Mickey Mouse and Tyler and Alyssa little stuffed Shamu the Whale. Jared was beyond excited! After getting settled in our villa and eating dinner there was a party for Mayor Clayton (The giant bunny who is the village mascot!) There was birthday cake, cotton candy, snow cones, games, music. It was so much fun! It was the perfect start to our trip!


Our Home for the Week!